Adjustments, Again
After almost a month on a routine regime of immune suppressants, the docs have decided it is time to change the dosing. I am in range, but at the minimal level, so the doses of immune suppression drugs have been “upped” and it is back to adjusting to the changes. Migraines and sleepless nights have returned, but as I am prone to say, I have not returned to the dialysis clinic.These symptoms are not as horrendous as the first night. That night I did not sleep and had to keep a compress on my forehead to fight the pain. I remember thinking if life on immune suppression was going to be like that, then forget the transplant. Fortunately, things have tapered and it is bearable.
The wound from the tesio surgery continues to heal. Being immune suppressed causes healing to go slower than before. I had not given a slower healing time much thought. I was warned at the last appointment at the clinic about paper cuts and the need to prevent small things I would previously brush off from causing large infections.
The hope is when I “get out” several months from the transplant, my body will not want to reject the new organ and instead of increasing drugs, they can be decreased. I was at the hospital yesterday for more tests and while there I spoke with a patient who was 11 years out from his transplant. I was encouraged by the 11 years and was very encouraged with his dosing.
posted by Jeff Waldo @ 9:25 AM
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