Deportation
It has been a week since I was de-ported. The surgeries went well and all the ports are removed. I am collecting my thoughts about having all the ports, doing dialysis and relying on a machine to stay alive.The post-op folks had trouble getting me awake and when they had me up; I had the shakes and was sick for the rest of the day. The discharge nurse said almost all the patients were having trouble. She mentioned something the anesthesiologist was using. (I do remember something on my face, but once I get hazy, it’s all over. We got to a “holding area” right before going in the OR and Shelley kept telling me I was in that area right before they took me into the OR for the transplant. I did not recall ever being there. When I go, I go.)
My shoulder and chest have been bruised and sore all week. But after a couple of days, I did enjoy a hot shower! I head back to the hospital this week for stitch removal and more tests.
It is odd not having the catheters in my chest and the tubes running under my skin. I guess I became accustomed to them. (I catch myself trying to feel the tubes to “check” on them.) I’m not complaining that they are gone, but it will be more of an adjustment than I thought it would be.
posted by Jeff Waldo @ 8:19 PM
2 Comments:
Hey, cuz. I know how much better you are gonna be. Dad was a new man after his transplant.
We love you.
Kevin
Dear Jeff, I want to thank you for being an inspiration - and for telling it like it is. I am facing a similar journey but am at the beginning of the whole ESRD thing(After 30 years of MPGN,my clearance is around 14%, numbers are finally in ESRD, I had my 1st iron shot this week and meet w/transplant surgeon in early Dec.) I need to think about possibly having to be on dialysis before/until the transplant takes place (hopefully will in next year- I have 4 siblings who have offered, are healthy- 3 O+, one matching my blood type). But- I am scared- scared of the pain, watching my blood in large amounts leave my body (this has always freaked me out), scared silly to face all of this. My son (9) and husband are a comfort, but this is a major hurdle in my life and I am so afraid I will not be able to handle it. Anyway, thank you. I wish you a long, healthy and happy life with your family and friends.
Sincerely,
Marie
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